Chiari Malformation Support Forum

I dont know muchI have an appt with the GP tomorrowI have neck and shoulder pain that I thought was stress related. Multidisciplinary Experts Work Together to Provide Exactly the Care You Need.

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I was 18 and starting my first year of college.

Chiari malformation support forum. Have your daughter join an online support group for Chiari she will learn lots from it. The Chiari Malformation Support Group has 13687 members. Similar Threads - Chiari Malformation Anyone One Else Have a Chiari Malformation. WELCOME TO ZIPPERHEAD My aim is to raise more awareness of Chiari Malformation and Syringomyelia and to offer support to people with these conditions as well as for families of Chiari sufferersIf you want to know more about Chiari Malformation kee-ahh-ree and Syringomyelia see-ring-oh-my-eehlia then please feel free to browse through the menus. Ad The Right Diagnosis and Care. Ad Reliable comprehensive and easy to understand information.

We are sharing our experience strength and hope. He refused to do surgery unless he absolutely had to so we scheduled a follow-up for the end of Feb and he sent we to a neurologist. Ad Find out the causes and risk factors of Chiari malformation to be aware of now. When part of the cerebellum extends below the foramen magnum and into the upper spinal. Chiari malformations are structural defects in the base of the skull and cerebellum the part of the brain that controls balance. October 17 2007 at 745 am.

A review of her past records reveals that she was seen in May of 2017 in the ED for vaso-vagal syncope was not admitted and then had an MRI which revealed. Connect with other patients friends loved ones and those affected by Syringomyelia Chiari Malformation Rare Diseases Rare Disorders and Chronic Diseases. I personally do not have a syrinx and know that the members here that do can offer a more detailed account of what they r going thru. Budd-Chiari malformation Type 1 is noted in her HP PMH. I am hoping to make a very friendly chiari malformation support site that doesnt have too much integration with other sites so it stays a bit more private. My family doctor feels I need to be seen sooner so I am waiting to be scheduled.

Normally the cerebellum and parts of the brain stem sit above an opening in the skull that allows the spinal cord to pass through it called the foramen magnum. Please do not use your full name and I hope you share. Welcome to Friends with Chiari. -I saw your post and just found it interesting because before I had this I had never even heard of it and now I have found quite a few people with it. Patient Forums for Chiari Malformation. A Support Group for all.

Our Experts Can Help You. At Chiari Awareness UK we are committed to help sufferers of Chiari Malformation or those affected by it via the spreading of information and group discussion. I have Chiari Malformation type 1 had no symptoms until Sept 2010. WELCOME TO ZIPPERHEAD My aim is to raise more awareness of Chiari Malformation and Syringomyelia and to offer support to people with these conditions as well as for families of Chiari sufferersIf you want to know more about Chiari Malformation kee-ahh-ree and Syringomyelia see-ring-oh-my-eehlia then please feel free to browse through the menus. I was diagnosed with Chiari in Oct my family doctor immediately sent me to a neurosurgeon. Chiari Malformation Support Group is a safe place to come for those fighting Chiari those who love someone with Chiari care takers or those caring for our precious little warriors.

Some studies suggest that females are affected more often than males. Its a safe forum where you can create or participate in support groups and discussions about health topics that interest you. Mine was diagnosed just over a year after the diagnosis of CIDP. In most cases a Chiari malformation is thought to be present at birth congenital although some cases may not be discovered until adulthood sometimes incidentally when a brain scan is done for another reason. I am 16 years old and I have Chiari Malformation. I do believe its the same as Arnolds chiari malformation.

I am so glad to have found a forum that seems fairly active. The best thing I can suggest is to locate a dr that specializes in chiari and syringomyelia. Symptom treatment and advice from community members. I was diagnosed with Chiari Malformation in July of 2007 and I had surgery on Augest 31st of 2007 so it will be a year since I had it in a few weeks. Discover what causes an Arnold Chiari malformation how to treat and detect the symptoms. This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Tibberz Dec 6 2016 in forum. So I have been scheduled to see a neurologist in October they are looking at some other things on my MRi that might be MS. It can be a lonely road coping with symptoms seeking treatments or even a Specialist. Welcome to Friends with Chiari. Cerebellar tonsils extending to 12 mm below foramen magnum consistent with Chiari I type malformation. I do suggest education before visiting a doctor because then you can tell how much the doctor really knows about Chiari.

Hi and welcome to the chiari forum Unfortunately too many with a syrinx chiari or other related issue do have the same problem with their drs. I recently had MRI done and am told I have chiari malformation type 1. Please do not use your full name and I hope you share. Chiari malformations affect individuals of every race and ethnicity. I am hoping to make a very friendly chiari malformation support site that doesnt have too much integration with other sites so it stays a bit more private. The support group I joined many years ago is defunct now so I dont have a suggested group.

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